I need a place for just me, a nice safe blog where I can really be honest and try to start writing again…without all of the grief. I have been going through this journey for the past two years to find a diagnosis for whatever it is that is causing havoc on my body. There have been days when the road looked so much darker and I have had so many moments where I just wanted to give in. Daily life is a struggle, it is so scary that in a week I will have my twenth birthday, I never imagined that my life would be like this. Some days I am very independent, and other days I am bedridden. I have spent any spare moment that I have researching and reading, insomnia helps it means more time to read. I have also been reading a lot of cancer survivors blogs, I am glad that there is so much support out there for that disease….the kind of coverage that those of us with less known illnesses can only dream of having. I am just glad that people are taking notice. School beings on Monday and I already dread it and at the same time cannot wait. I long to be “normal” to be able to do everything that everyone does, but at the same time I am faced with so many obstacles. I will be going to school M W & F, and I will be working at the museum T & Th, on top of that Dr.’s appt’s and a new occupational therapist that I will be seeing twice a week. I also found out this week that my neurologist is sending me to Wake Forest for a second opinion. Another visit that I can only hope I have the energy for. That’s enough for now, more will come with time.
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